October 29, '08: Deconditioning and Multiple Sclerosis
By Cherie C. Binns RN BS MSCN
Deconditioning. I used to get so angry when Health Care professionals used that word to describe me or the cause of symptoms for which I was asking for help. Many years ago, before my MS diagnosis, I was having a difficult time doing the simplest things like walking up a flight of stairs or carrying a load of laundry a few feet from the laundry room to the bedroom or doing the grocery shopping. I would have trouble breathing normally and evenly and felt like I could not get my lungs full of air. My heart raced and I had palpitations. My legs burned after walking a half block and then my left leg started doing whatever it darn well pleased.
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=============================================Deconditioning. I used to get so angry when Health Care professionals used that word to describe me or the cause of symptoms for which I was asking for help. Many years ago, before my MS diagnosis, I was having a difficult time doing the simplest things like walking up a flight of stairs or carrying a load of laundry a few feet from the laundry room to the bedroom or doing the grocery shopping. I would have trouble breathing normally and evenly and felt like I could not get my lungs full of air. My heart raced and I had palpitations. My legs burned after walking a half block and then my left leg started doing whatever it darn well pleased.
Click here to continue reading this story from our ASK the MS Nurse
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October 22, '08: MS, My Brain, and Me
written by Merely Me - October 22, 2008
MS, My Brain, and Me
I think therefore I am?
Okay so what if you are not able to think? Do you just cease to exist? I will tell you that I have been feeling that way lately. I am feeling as though I cannot get through the muck in my brain in order to have semi-coherent thoughts. And this angers me.
When you get your diagnosis of Multiple Sclerosis, you get a lot of information about movement. You hear about having difficulties with walking or feeling weak or numb in your limbs. The focus is usually upon physical functioning. What they usually don't talk about are the issues with cognition.
READ COMPLETE STORY
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Use this link, to register to receive the weekly e-Newsletter:
"Stu's Views and MS Related News"
Keeping you up-to-date, with Multiple Sclerosis Related News
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=============================================MS, My Brain, and Me
I think therefore I am?
Okay so what if you are not able to think? Do you just cease to exist? I will tell you that I have been feeling that way lately. I am feeling as though I cannot get through the muck in my brain in order to have semi-coherent thoughts. And this angers me.
When you get your diagnosis of Multiple Sclerosis, you get a lot of information about movement. You hear about having difficulties with walking or feeling weak or numb in your limbs. The focus is usually upon physical functioning. What they usually don't talk about are the issues with cognition.
READ COMPLETE STORY
**********************************************************************
Use this link, to register to receive the weekly e-Newsletter:
"Stu's Views and MS Related News"
Keeping you up-to-date, with Multiple Sclerosis Related News
**********************************************************************
September 25, '08: Disease Modifying Drugs Tie for Efficacy in Multiple Sclerosis
Disease Modifying Drugs Tie for Efficacy in Multiple Sclerosis: Presented at ANA
By Andrew N. Wilner, MD
Source: DG Dispatch
SALT LAKE CITY, Utah -- September 24, 2008 -- The different disease-modifying drugs available on the market for treatment of relapsing-remitting multiple sclerosis (MS) result in similar rates of disease relapse when examined over the long term, according to a retrospective chart review.
Loren Rolak, MD, The Marshfield Clinic, Marshfield, Wisconsin, presented the results of the study here on September 23 at the American Neurological Association (ANA) 133rd Annual Meeting.
Dr. Rolak and colleagues reviewed the clinical course of 573 patients with relapsing-remitting MS treated with disease modifying agents at The Marshfield Clinic. They evaluated 176 patients for >5 years, 47 patients for >10 years, and 27 patients for >12 years.
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By Andrew N. Wilner, MD
Source: DG Dispatch
SALT LAKE CITY, Utah -- September 24, 2008 -- The different disease-modifying drugs available on the market for treatment of relapsing-remitting multiple sclerosis (MS) result in similar rates of disease relapse when examined over the long term, according to a retrospective chart review.
Loren Rolak, MD, The Marshfield Clinic, Marshfield, Wisconsin, presented the results of the study here on September 23 at the American Neurological Association (ANA) 133rd Annual Meeting.
Dr. Rolak and colleagues reviewed the clinical course of 573 patients with relapsing-remitting MS treated with disease modifying agents at The Marshfield Clinic. They evaluated 176 patients for >5 years, 47 patients for >10 years, and 27 patients for >12 years.
Why I did it, and how it affected me...
At first I thought I deserved a break from using it. After all, it had been longer than a year (thankfully) since having a bad exacerbation. But most importantly (at the time that I began the hiatus) was that I was tired of my injection sites looking as they had been. Many of you know, the puffy and bruised looking, tender, or hardened skin reaction that can often be found from those doing sub-cutaneous injections.
How often do you, my ms peers, hear or read or know first hand of these skin reactions?
How often do you hear from a peer, who (like me) is now admitting of the temporary halt of his or her medication?
>> READ Entire Story <<
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At first I thought I deserved a break from using it. After all, it had been longer than a year (thankfully) since having a bad exacerbation. But most importantly (at the time that I began the hiatus) was that I was tired of my injection sites looking as they had been. Many of you know, the puffy and bruised looking, tender, or hardened skin reaction that can often be found from those doing sub-cutaneous injections.
How often do you, my ms peers, hear or read or know first hand of these skin reactions?
How often do you hear from a peer, who (like me) is now admitting of the temporary halt of his or her medication?
>> READ Entire Story <<
MS Focus - Spring Volume 2008
Copyright Multiple Sclerosis Foundation, Inc - Excellent Answers to Great Questions
Found on the New MS Views and Related News website
Click HERE << then scroll down to item # 25
=============================================Copyright Multiple Sclerosis Foundation, Inc - Excellent Answers to Great Questions
Found on the New MS Views and Related News website
Click HERE << then scroll down to item # 25
April 10, '08: The Myelin Project
Click the Link to take you to the web pages for:
The Myelin Project
=============================================The Myelin Project
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April 06, '08: In which age category were you diagnosed with MS
In which age category were you diagnosed with MS
Go to: Stu's Views and MS News Blogspot to cast your vote
Then view the other new items found on this BLOG webpage, by scrolling til you reach the bottom of the page.
Click the above link to find the poll. This poll ends soon.
=============================================Go to: Stu's Views and MS News Blogspot to cast your vote
Then view the other new items found on this BLOG webpage, by scrolling til you reach the bottom of the page.
Click the above link to find the poll. This poll ends soon.
April 03, '08: Stu's Views and MS News - New BLOG
A New blog has been created so that you can freely leave comments.
Go to: http://wwwmsviewsandrelatednews.blogspot.com
to see what I am writing about.
Here too, at this new blog, you will find many advertisements and links to other MS Blogs and MS Websites.
Call it your home away from home and visit often.
Thanking you in advance.
Stuart Schlossman
=============================================Go to: http://wwwmsviewsandrelatednews.blogspot.com
to see what I am writing about.
Here too, at this new blog, you will find many advertisements and links to other MS Blogs and MS Websites.
Call it your home away from home and visit often.
Thanking you in advance.
Stuart Schlossman
March 31, '08: Sunshine and Moonlight — A Journey with Multiple Sclerosis
Sunshine and Moonlight — A Journey with Multiple Sclerosis
Everyone has Sunshine and Moonlight in their lives. It’s just that my sunshine and moonlight has come in the form of Multiple Sclerosis. So, why the name “Sunshine and Moonlight”? When I was diagnosed, I was amazed by the negative terms that were tossed around –bad days, MS days, remission, relapses, episodes, disease progression. All scary. All negative. I’ve chosen to focus on the positive instead, as I search to find the “new normal” in my life. “Sunshine” (my husband’s nickname for me) — represents my post MS-diagnosis day-to-day life. And, “Moonlight” — represents everything else. I consider myself to be a Patient-Educator, here to help others newly diagnosed and those continuing their battles with M.S. And, this, my friends, brings us to “Sunshine and Moonlight — A Journey with Multiple Sclerosis.” Welcome!
View Kim's Blog by Clicking Here
=============================================Everyone has Sunshine and Moonlight in their lives. It’s just that my sunshine and moonlight has come in the form of Multiple Sclerosis. So, why the name “Sunshine and Moonlight”? When I was diagnosed, I was amazed by the negative terms that were tossed around –bad days, MS days, remission, relapses, episodes, disease progression. All scary. All negative. I’ve chosen to focus on the positive instead, as I search to find the “new normal” in my life. “Sunshine” (my husband’s nickname for me) — represents my post MS-diagnosis day-to-day life. And, “Moonlight” — represents everything else. I consider myself to be a Patient-Educator, here to help others newly diagnosed and those continuing their battles with M.S. And, this, my friends, brings us to “Sunshine and Moonlight — A Journey with Multiple Sclerosis.” Welcome!
View Kim's Blog by Clicking Here
March 11, '08: BLOG Flux Directory
Blog Flux Directory
USe this service when creating your own blog, for polls, tracking and other misc. information
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USe this service when creating your own blog, for polls, tracking and other misc. information
